Kokua Mau Reports

Welcome to the Kōkua Mau’s reports page. Over the years Kōkua Mau has collaborated with other agencies and organizations. The reports generated through these collaborations are listed here.

Research Completed: Hawaii Resident Perceptions of Advance Care Planning

We contracted with Ward Research to conduct telephone surveys and focus groups of Hawaii residents to learn about their attitudes towards conversations with doctors, families and completion of advance care documents. This research was made possible with a grant from the Stupski Family Fund at the Hawaii Community Foundation.

The results are very interesting, showing people in Hawaii are having conversations but there is a long way to go.

Research shows people are not having conversations because:

  • They think they are healthy (so it is too soon)
  • their family will know what they want (even though they never told them)
  • and they trust their healthcare teams to make decisions (even though they never told them their wishes)

We will be using these results to design our outreach programs. We hope this research will be useful for others as well.

Read more and the PDF files of the research report


Analysis of an innovative and unique ambassador program

Kōkua Mau’s Let’s Talk Story Program a 2017 review

The Challenge:

(Feb. 2018) Many are not comfortable initiating conversations about care for loved ones or themselves should there be a diagnosis with a serious illness. As a result, those important conversations are avoided with no clear resolution. It usually takes a health crisis to bring these issues to the forefront, but this creates tremendous undue stress on families. At a time when the focus should be on providing the best quality of life for those with a serious illness, attention is often diverted to resolving personal differences that can often splinter families.

Kōkua Mau’s Let’s Talk Story Program was originally launched as a Speakers Bureau and has evolved into a more substantive ambassador program designed to break down those barriers. Read more and download the PDF of our comprehensive Analysis of our Let’s Talk Story Program Activities.

 


 

Palliative Care: An Underutilized Resource in Cancer Survivorship and Improving Quality of Life for People with Cancer.

Kōkua Mau, Hawaii Hospice and Palliative Care Organization has successfully collaborated with the Hawaii Cancer Control Programs since 2005.  To learn how other states collaborate with organizations providing hospice and palliative care, Kōkua Mau conducted a survey in September 2009. The results are presented in this 20-page report (PDF).

Hospice and palliative care professionals and programs are an under-utilized resource for Comprehensive Cancer Control Programs.  Palliative Care provides supportive care from the time of diagnosis to relieve physical, emotional and spiritual suffering, using a team approach to help patients and their loved ones.  As Comprehensive Cancer Control Programs and coalitions increase their emphasis on cancer survivorship and quality of life, and multi-disciplinary, patient and family centered palliative care programs expand, there are good opportunities for collaboration.

The survey focused on five areas:

  • public education
  • patient, family and caregiver education
  • research, epidemiology and prevention
  • professional educational
  • and policy and planning

Summary findings:

  • Forty-four % (29/66) of states, territories and Indian Tribes, reported that they already have some collaboration although few states reported activities in all areas.
  • Results show that 27 states have end-of-life issues built into the state plan, 22 have a palliative care liaison, collaborate to disseminate end-of-life materials and include palliative care topics in conferences, and
  • 19 collaborate on advance care planning education and study barriers to end-of-life care.

There are mutually beneficial ways for hospice and palliative care experts and the cancer community to partner to improve survivorship. (For details please see the full report)