On this constantly updated page we list COVID-19 resources helpful for our members and supporters. If you know of resources to add, please share them with us. Subscribe to our eNewsletter for regular updates.
Thank you to all of our amazing health care professionals and your incredible contributions in the face of the COVID-19 crisis. We wish we could give you all areal lei for the wonderful work you are doing. Mahalo nui loa.
Coronavirus Disrupts Hard Decisions About End-Of-Life Treatment
April 30, 2020, NPR, Morning Edition. The coronavirus means more people are dying alone in ICUs. Families are having to make abrupt decisions at a distance about terminal care. Palliative care specialists try to adapt. Listen to the 4 minute NPR program.
The Center to Advance Palliative Care (CAPC) has a tailor made COVID-19 Response Resources toolkit.
CAPC describes the tools, skills, and training health systems should deploy immediately to ensure appropriate symptom management and patient communication in the context of the COVID-19 pandemic. Updated daily.
What’s in the CAPC Toolkit?
- Communication Tips
- Symptom Management Protocols
- Palliative Care Team Tools
- Patient and Family Support Resources from the CDC
- Medicare COVID-19 Waivers
- Federal COVID-19 Guidance
- Setting-Specific Guidance
- Role of Palliative Care
Ariadne Labs’ Serious Illness Care Program developed a COVID-19 Response Toolkit to support health systems and clinicians in addressing the communication needs of patients in the community and those in the hospital. The toolkit includes:
- Inpatient Conversation Guide (PDF), resources and video
- Outpatient Conversation Guide (PDF), resources and video
- Patient Resources and Conversation Guide (PDF)
Information on Coronavirus is geared at the general public.
Respecting Choices published an open source COVID-19 Resource toolkit on their website https://respectingchoices.org/covid-19-resources/. It contains quick education and associated conversation guides for proactive care planning conversations for those with serious illness at high risk for COVID-19. Their ‘Help with Breathing and CPR nationally certified decision aids’, along with some patient facing information.
April 12, 2020: Kokua Line: Naming a health-care proxy more important than ever
Read the article in the Honolulu Star-Advertiser’s Kokua Line by Christine Donnelly, from April 12, 2020. All COVID-19 coverage has free access at the Honolulu Star-Advertiser.
To health care professionals everywhere: these are unprecedented times. There’s no roadmap. We’re facing conversations that we never expected – or wanted – to have.
Vital Talk created the COVID-ready communication skills: A playbook of VitalTalk Tips. This free guide helps professionals start conversations and provides some practical advice on how to talk about some difficult topics related to COVID-19. Since 3/30 they have added a number of short videos. The 13-page guide is available in 14 languages.
Vital Talk has 2 decades of experience studying and teaching communication and crowdsourced this resource.
VitalTalk Tips App
For clinicians who care for patients with serious illness and their families, having great communication skills makes a difference – your patients will understand their medical situation better, and build trust with you faster, and you’ll be able to guide them to medical decisions that match their values. VitalTalk has created an app that contains communication skill tips, focused on the moments where clinicians most often get stuck. The VitalTalk Tips app is available for iPhone and for Android devices.
HPNA COVID-19 Patient Care Guides
The Hospice and Palliative Nurses Association developed a series of Primary Palliative Nursing COVID-19 Patient Care Guides. Written by national nursing experts in the hospice and palliative nursing field, these guides highlight key nursing information about anxiety, communication, pain, delirium, dyspnea, nausea, terminal secretions and nursing care and support at end-of-life. This information is on the HPNA website.
End of Life Nursing Education Consortium (ELNEC) Resources
The ELNEC team (End of Life Nursing Education Consortium) extends their support for all clinicians providing palliative care and hopes you make sure to take care of yourselves during this challenging time.End of Life Nursing Education Consortium
ELNEC has provided free resources for support, so please take advantage and share with colleagues.
Zoom Get-togethers in Hawai‘i
Kōkua Mau Monthly Virtual Monthly Meeting
Thur. May 28
Please join us to learn about Concurrent Care, the innovative new in-home palliative care program from the Veterans Administration (VA) Pacific Islands Healthcare Systems (PIHC). Dr. Liane Tokushige will outline the program, how people can participate and early outcomes. This is the first in-home palliative care program offered by the VA in the United States.
This is already our third virtual Kōkua Mau meeting via zoom. As an added security measure please register in advance for this meeting to get the zoom details:
PS: Please make sure you update to zoom 5.0 before May 30. More about that on our website zoom made easy.
Calling social workers in hospice and palliative care.
Monday, June 1
Please join us for our 6th get together (via Zoom) of social workers. All are welcome and RSVP to Hope Young. This is a wonderful chance to talk about what you are experiencing now with COVID-19 as well as share resources and get feedback from colleagues. This is the 5th meeting, back by popular demand.
National POLST Resources: POLST and COVID-19
- National POLST: Long-Term Care Facility Guidance for POLST & COVID-19 (PDF file)
- National POLST COVID-19 Statement (3/30) PDF file
- Guidance for Completing POLST Forms in Crisis Standards of Care (3/30) PDF file
- Nursing Facility Specific tools
Other POLST Resources
- Oregon Health & Science University Center for Ethics:
- Respecting Choices:
Advance Care Planning (ACP)
COVID Conversations Toolbox from the Coalition for Compassionate Care of California (CCCC)
The COVID-19 pandemic makes the threat of becoming seriously ill frighteningly real – and greatly emphasizes the need to know each patient’s values and wishes regarding treatment options. Conversations around serious illness and medical treatment options can be very empowering. The CCCC‘s COVID Communications Toolbox provides easy access and support for healthcare providers and consumers, as they navigate decision-making during these these challenging times.
The Conversation Project
Download a brand new Conversation Project guide specific to COVID-19, to help people take action and be prepared. We can’t control how this pandemic plays out. But we can control who speaks for us if we’re unable to speak for ourselves, and we can take the time to make sure they know what matters most to us. Have this conversation today. Please look at their additional resources.
For up-to-date TELEHEALTH ‘Telehealth tab‘ on the CAPC COVID-19 Response Resources page
With physical distancing telehealth is more important every day. The Center to Advance Palliative Care (CAPC) becomes the one-stop site for starting or carrying on a telehealth program.
Virtually Perfect? Telemedicine for COVID-19
March 11, 2020, New England Journal of Medicine.
We list upcoming and recorded webinars here. Our educated guess is that recorded webinars will be made available freely in these challenging times with the same URL. They will be migrated to ‘Recorded Webinars’. For a complete listing visit our webinar page.
COVID-19 Webinars offered by JABSOM Geriatric Medicine from Monday & Wednesday 2:00 – 2:30pm
5/27 COVID Challenges and Opportunities in Assisted Living
Daniel Haimowitz, MD, FACP, CMD, Medical Director Arden Courts of Yardley Personal Care, Initial Chair of AMDA’s Assisted Living Work Group and Committee; Josh Allen, RN, C-AL Principal, Allen Flores Consulting Group
6/3 COVID Tracking Logs and Checklists
Caitlin Cook, MPH Hawaii Department of Health
The series COVID-19 Webinars offered by JABSOM Geriatric Medicine (2:00 – 2:30pm) is organized by Dr. Aida Wen and the Geriatrics Department at JABSOM and CEUs are available. More information (click on ‘Upcoming sessions‘ for details) and registration page
5/27 Therapeutic Response to Trauma and Loss in the COVID-19 Pandemic
This webinar by the Hospice Foundation of America will identify the issues of trauma and loss that visit us in today’s pandemic, explore how they influence each other, survey the short- and long-term challenges that are created, and delineate effective strategies for coping with the unique issues posed by COVID-19 trauma and loss. The focus will be on one’s work as a professional, as well as on personal self-care. 1.5 Complimentary CEs Available. Register here
5/14 COVID Conversations: CCCC Decision Aids, Ventilators, CPR, Transfers, and Comfort Care Webinar
The COVID-19 pandemic has changed how people consider treatment options in many ways. CCCC’s (Coalition for Compassionate Care of California) decision aids for CPR and Ventilator help explain these complex, invasive, yet potentially life-sustaining treatments with evidence-based information using consumer-friendly language. Presented by: Jessica Nutik Zitter, MD, MPH, Author & Practicing Physician, Alameda Health System, and Karl Steinberg, MD, CMD, HMDC, Medical Director, Hospice by the Sea. Recorded Webinar (available 30 days)
5/4 COVID-19 Webinars offered by JABSOM Geriatric Medicine from 2:00 – 2:30pm.
Dr. Takeshi Uemura and his colleague Dr. Eric Chyn will be talking about COVID symptom management. Dr. Chyn is currently in Yakima Washington, overseeing the care of 150 COVID-19 patients in 9 facilities. We heard him speak on 4/29, and he has front line experience of caring for patients, supporting families, etc. All JABSOM webinars are recorded. For Recorded Webinars: click on ‘Recorded Training Sessions‘ tab.
4/29 Disenfranchised Grief and COVID-19
By the Hospice Foundation of America. Disenfranchised grief refers to losses that are not publicly acknowledged, socially supported, and openly mourned. In the COVID-19 pandemic such losses are myriad – complicating grief. 1.5 complimentary CE credit hours available for one year following the live program. More details.
4/29 Essential Conversations: Planning for Care and Serious Illness During the COVID Crisis
The COVID-19 pandemic is causing many of us to think about the kind of care we would want if we became seriously ill. Do you have questions or want to talk to loved ones about care preferences?
The call, geared to patients and the general public, will feature panelists Judy Thomas, JD, CEO of the Coalition for Compassionate Care of California and Steve Pantilat, MD, Distinguished Professor of Palliative Care, UC San Francisco Department of Medicine for a discussion about how to plan for care during COVID-19.
4/27 COVID-19 Discussion on Effective Virtual Visits
The National Hospice and Palliative Care Organization (NHPCO), in collaboration with the National Coalition for Hospice and Palliative Care (NCHPC) is hosting the webinar. CE/CME credit will be available for nurses and physicians. Recorded program will be available on 04/28/20.
4/22 COVID Conversations: Team Approach to Assisting Patients with Advance Care Planning
Presented by: Seiko Izumi, PhD, RN, FPCN, Associate Professor, School of Nursing, Oregon Health & Sciences University. Learn various situations where advance care planning conversations are critical in the time of the COVID-19 pandemic. Dr. Izumi will also discuss how the healthcare team works together to assist patients and their families with advance care planning and goal-concordant care. Recording.
- More recorded webinars on our Webinar COVID-19 page
NHPCO: Coronavirus Disease 2019 (COVID-19) Shared Decision-Making Tool (March 19, 2020) PDF file
Free Training courses for healthcare professionals from CSU Shiley Institute for Palliative Care.
The COVID-19 pandemic presents a severe healthcare crisis. Those most at risk from the virus – the elderly, frail, and/or those with underlying serious health problems – are the exact patient population that palliative care is designed to serve. To help clinicians quickly build basic palliative care skills and better serve patients and families affected by this crisis, CSU is offering Select Palliative Care Courses free of charge through June 30.
The National Coalition For Hospice & Palliative Care represents the 12 leading professional organizations dedicated to advancing the delivery of high-quality serious illness care to all who need it. Please visit their website for the latest COVID-19 information.
The Social Work Hospice & Palliative Care Network is developing an ongoing list of resources for this dedicated page with tips for social workers on the front lines, and facilitators for virtual Social Work Open Discussions. Please reach out to firstname.lastname@example.org to contribute or participate.
COVID-19 Respond with Aloha
As COVID-19 impacts Hawai‘i and the global community, it is an important time to respond with aloha and take care of each other. Kanu Hawai‘i has accelerated plans for the annual Volunteer Week to support an on-going virtual volunteer response to support community needs and address economic impacts related to COVID-19. More
Let’s make Personal Protection Equipment for Hawaii
- Is your facility looking for Personal Protection Equipment?
- Do you want to help by sewing masks, such as the Olson mask, or creating other materials for local agencies here in Hawai‘i?
Kōkua Mau will be coordinating with our movement and our members to reach out to crafting communities, sewing circles, and any volunteers who want to support our medical community right here in our islands. If you would like to help, like sew masks, contact us and we can help connect you with local agencies (or you can go onto getusppe.org.) Details, videos and patterns on our webpage
In these trying times we all need some perspective and some insightful reflection. In no particular order or priority we will list here website or blogs that hopefully will inspirational to you.
|The Pause Newsletter comes highly recommended by Kōkua Mau’s own Clarence Liu: “It is deeply spiritual without the trappings of religious language, poetic, and consoling. In short, a gem.” The Pause is our Saturday morning newsletter, a gathering of threads from the far-flung, ongoing conversation that is The On Being Project.|
Kōkua Mau’s own Clarence Liu shared a resource with us: Spiritual Practices for the Coronavirus Pandemic. Spiritual Practice website aims to disarm fear and uncertainty, use while taking preventative measures, handle social distancing and quarantine, be present with illness, and sustain hope.
That Discomfort You’re Feeling Is Grief, by Scott Berinato
March 23, 2020, Harvard Business review. They turned to David Kessler, an expert on grief, for ideas on how to do that.
Most of you know Atul Gawande for his work on advancing conversations on end-of-life goals of care – author of Being Mortal and The Checklist Manifesto. His article from 3/21 in the New Yorker: Keeping the Coronavirus from Infecting Health-Care Workers.
The Role of Palliative Care in a COVID-19 Pandemic by Jennifer Ballentine, Shiley, CSU. Link
Navigating COVID-19 as a Hospice and Palliative Care Professional by
Joe Rotella, Chief Medical Officer, AAHPM Link
Most of the time zoom works like a charm, flawlessly. If this is the case for you may stop reading here.
We have a dedicated website: zoom made easy
There are a million things that can go wrong. If you are among the unlucky ones, here are some videos that help.
Join a Zoom Meeting
To join a zoom meeting, please watch both of the videos first. Most of the problems we had were people not being able to hear or other issues related to the set up in their device they are using to participate.
Joining a Zoom Call for the First Time; Fun and Easy Online Connection (8 minutes): https://youtu.be/9isp3qPeQ0E
Joining & Configuring Audio & Video (2 minutes) (this looks different in an iPad, there it is on top of the screen): https://youtu.be/-s76QHshQnY
Joining zoom meetings with a mobile device
If you want to join a zoom meeting on a mobile device, you must download the app: ‘Zoom cloud meetings‘ from the app store (iPad/iPhone) or your google play store. This is not optional, but a zoom per-requisit. Please watch the video and install the app first, so you can join any meeting with zoom.
How to install Zoom and join Meeting on Mobile (iOS) Device!
How to install Zoom on Android: https://youtu.be/HRT305gWn-0
Basic Zoom accounts are free. A free account is more than enough for most people, especially if you only participate in zoom meetings. If you decide not to get a free zoom account keep in mind: There are option how to view the participants during a meeting (speaker and gallery view) that are not available for you if you don’t have a zoom account (even if others in the meeting may try to help you view that, since they have a free account).
Note: it is recommended that all co-host have a free basic zoom account, since some features are only available if you have an account.
GREAT VIDEO FOR HOSTS/ORGANIZERS
This is the best (zoom made) 10-minute video that spells it out very well. It assumes you are familiar with zoom already. If not consult the list above. Every host and co-host should watch this as a zoom 101 pre-requisit.
Meeting Controls (zoom): https://youtu.be/ygZ96J_z4AY
Note: These links are being provided as a convenience and for informational purposes only; they do not constitute an endorsement or an approval by the Kōkua Mau of any of the products, services or opinions of the corporation, organization or individual. Kōkua Mau bears no responsibility for the accuracy, legality or content of the external site or for that of subsequent links. Contact the external site for answers to questions regarding its content.