On this constantly updated page we list COVID-19 resources helpful for our members and supporters. If you know of resources to add, please share them with us. Subscribe to our eNewsletter for regular updates.
The Center to Advance Palliative Care (CAPC) has a tailor made CAPC COVID-19 Response Resources Toolkit. There website and relevant PDF files are updated daily or as needed to reflect real-time changes.
The COVID-19 Response Resources toolkit included crisis communication and symptom management protocols for all clinicians, and guidance to help palliative care teams address high levels of volume and stress during a crisis.
What’s in the CAPC Toolkit?
- Communication Tips
- Symptom Management Protocols
- Palliative Care Team Tools
- Patient and Family Support Resources from the CDC
- Medicare COVID-19 Waivers
- Federal COVID-19 Guidance
- Setting-Specific Guidance
- Role of Palliative Care
3/31 TUE Briefing: Serious Illness, Palliative Care, and the Impact of COVID-19 watch the recorded webinar
In this recorded webinar CAPC provided an update to their previous briefing from 3/19 on what they are seeing, hearing, and learning about the impact of COVID-19 on patients with serious illness. The patient population of older adults with serious illness is at the highest risk from COVID-19, and palliative care teams have unique expertise and insights critical for our health systems during this crisis.
CAPC will also describe the tools, skills, and training health systems should deploy immediately to ensure appropriate symptom management and patient communication in the context of the COVID-19 pandemic.
It contains quick education and associated conversation guides for proactive care planning conversations for those with serious illness at high risk for COVID, our Help with Breathing and CPR nationally certified decision aids, along with some patient facing information. Please distribute as desired.
To health care professionals everywhere: these are unprecedented times. There’s no roadmap. We’re facing conversations that we never expected – or wanted – to have. Vital Talk created the COVID-ready communication skills: a VitalTalk open source primer. Vital Talk has 2 decades of experience studying and teaching communication and crowdsourced this resource.
This free guide will help professionals start conversations and provide some practical advice on how to talk about some difficult topics related to COVID-19. They have added a number of short videos (as of 3/30).
COVID Ready Communication Playbook
A 13-page guide available in 14 languages, is for health care professionals everywhere.
National POLST Resources: POLST and COVID-19
- Quick access the their PDF: National POLST: Long-Term Care Facility Guidance for POLST & COVID-19
The National POLST Office added two new resources (and restructured their webpage, as of 3/30)
- National POLST COVID-19 Statement (3/30) PDF file
- Guidance for Completing POLST Forms in Crisis Standards of Care (3/30) PDF file
Other POLST Resources
- Oregon Health & Science University Center for Ethics:
- Respecting Choices:
For up-to-date TELEHEALTH information we recommend you visit the continuously updated CAPC Website. Please click on the:
‘Telehealth tab‘ on the CAPC COVID-19 Response Resources page
As telehealth becomes more important every day with physical distancing, CAPC is necoming the one-stop site for starting or carrying on a telehealth program.
Virtually Perfect? Telemedicine for COVID-19
March 11, 2020, New England Journal of Medicine.
We list upcoming and recorded webinars here. Our educated guess is that recorded webinars will be made available freely in these challenging times with the same URL. They will be migrated to ‘Recorded Webinars’. For a complete listing visit our webinar page.
3/31 TUE Briefing: Serious Illness, Palliative Care, and the Impact of COVID-19
Join CAPC as they provide an update to our previous briefing on what we are seeing, hearing, and learning about the impact of COVID-19 on patients with serious illness. The patient population of older adults with serious illness is at the highest risk from COVID-19, and palliative care teams have unique expertise and insights critical for our health systems during this crisis.
They also describe the tools, skills, and training health systems should deploy immediately to ensure appropriate symptom management and patient communication in the context of the COVID-19 pandemic.
03/31 TUE Telehealth & Virtual Visits Webinar hosted by NHPCO
10-11 am HST (4-5:00pm EDT)
Join NHPCO for a live, interactive webinar on Telehealth & Virtual Visits. Telemedicine is taking a front and center role as the health care community battles COVID-19. During this session, we will talk about how Telehealth & Virtual Visits can be utilized by the hospice and palliative care community, discuss tips for a successful visit and have a Q&A session with some of our Telehealth experts. Please register here for the webinar session.
4/3 FRI Making Funerals Meaningful in the Age of COVID-19
Fri, April 3, 2020
6 – 7 am HST (12:00-1:30 PM EDT)
by the Hospice Foundation of America Register and more information
4/15 TUE HCCIntelligence™ COVID-19 Update
COVID-19: The Simione Webinar Series
APRIL 1 @ 2-3 PM EASTERN Part 2: Financial Operations & Remote Technology Resources details on their website
APRIL 3 @ NOON to 1 PM EASTERN Part 3: Emergency Preparedness and Regulatory Update details on their website
Listen to the recorded free webinar from CAPC from 3/18 “Palliative Care and the Impact of COVID-19” with Dr. Diane Meier and Dr. Sean Morrison.
- More on our Webinar COVID-19 page
NHPCO: Coronavirus Disease 2019 (COVID-19) Shared Decision-Making Tool (March 19, 2020) PDF file
The National Coalition For Hospice & Palliative Care represents the 12 leading professional organizations dedicated to advancing the delivery of high-quality serious illness care to all who need it. Please visit their website for the latest COVID-19 information.
The Social Work Hospice & Palliative Care Network is developing an ongoing list of resources for this dedicated page with tips for social workers on the front lines, and facilitators for virtual Social Work Open Discussions. Please reach out to firstname.lastname@example.org to contribute or participate.
COVID-19 Respond with Aloha
As COVID-19 impacts Hawai‘i and the global community, it is an important time to respond with aloha and take care of each other.
Let’s make Personal Protection Equipment for Hawaii
- Is your facility looking for Personal Protection Equipment?
- Do you want to help by sewing masks or creating other materials for local agencies here in Hawai‘i?
Kōkua Mau will be coordinating with our movement and our members to reach out to crafting communities, sewing circles, and any volunteers who want to support our Medical community right here in our islands. If you would like to help, like sew masks, contact us and we can help connect you with local agencies (or you can go onto getusppe.org.) Details on our webpage
Free Training courses for healthcare professionals from CSU Shiley Institute for Palliative Care.
The COVID-19 pandemic presents a severe healthcare crisis. Those most at risk from the virus – the elderly, frail, and/or those with underlying serious health problems – are the exact patient population that palliative care is designed to serve. To help clinicians quickly build basic palliative care skills and better serve patients and families affected by this crisis, CSU is offering Select Palliative Care Courses free of charge through June 30.
In these trying times we all need some perspective and some insightful reflection. In no particular order or priority we will list here website or blogs that hopefully will inspirational to you.
Kokua Mau’s own Clarence Liu shared a resource with us: Spiritual Practices for the Coronavirus Pandemic. Spiritual Practice website aims to disarm fear and uncertainty, use while taking preventative measures, handle social distancing and quarantine, be present with illness, and sustain hope.
That Discomfort You’re Feeling Is Grief, by Scott Berinato
March 23, 2020, Harvard Business review. They turned to David Kessler, an expert on grief, for ideas on how to do that.
|Most of you know Atul Gawande for his work on advancing conversations on end-of-life goals of care – author of Being Mortal and The Checklist Manifesto. His article from 3/21 in the New Yorker: Keeping the Coronavirus from Infecting Health-Care Workers.|
The Role of Palliative Care in a COVID-19 Pandemic by Jennifer Ballentine, Shiley, CSU. Link
Navigating COVID-19 as a Hospice and Palliative Care Professional by
Joe Rotella, Chief Medical Officer, AAHPM Link
Note: These links are being provided as a convenience and for informational purposes only; they do not constitute an endorsement or an approval by the Kōkua Mau of any of the products, services or opinions of the corporation, organization or individual. Kōkua Mau bears no responsibility for the accuracy, legality or content of the external site or for that of subsequent links. Contact the external site for answers to questions regarding its content.