Quick overview: YouTube Channel additions
We have added new videos to our YouTube channel:
- A Caregivers Journey with Palliative Care in 3 minutes
- Prognostication and Palliative Care
- LymphaCare Hawaii advocates for cancer survivors who develop lymphedema
- Palliative Care – Extra Support for People with Cancer
- A Caregivers Journey with Palliative Care
- VA Resources for Seriously Ill Veterans in Hawaii
- Veterans Benefits and Entitlements
- Palliative Care Awareness Campaign on Instagram in Hawaii
- Advance Care Planning Innovations in Community Outreach in Hawaii
- Update on POLST nationally, new documents and the national POLST Form
- An Update on Hawaii’s Our Care Our Choice Act
- Innovations in Palliative Care
- Help with stress and and anxiety in COVID-19 times – Thought Field Therapy (TFT)
- Funerals and Memorials in the times of COVID-19
- Mapping Palliative Care in the State of Hawaii
- Palliative Care Summit in Hawaii 2020
- Advance Care Planning in the time of COVID-19 in Hawaii
- Questions about Medicare? – The ABCD’s of Medicare explained
- How to Help Your Older Parent
A Caregivers Journey with Palliative Care in 3 minutes
A moving caregiver’s testimony about her and her husband’s cancer journey and palliative care. Living on Maui, Andrea talks story about how they accessed palliative care in Honolulu and at home (This shortened version is thanks to the editing suggestions of our Kōkua Mau volunteer extraordinaire Rachel.)
Prognostication and Palliative Care
Estimating and communicating prognosis, while often challenging, is often an essential part of care for those living with serious illness.
Patients, family members, and providers, all need good prognostic information on which to base important decisions. In this introductory presentation on the subject, we will cover the following learning objectives:
Describe aspects of prognostication
Review general guidance when discussing prognosis
List tools and special considerations for a variety of situations
Our presenter Dr. Daniel Fischberg is the Medical Director of the Pain & Palliative Care Department at The Queen’s Medical Center in Honolulu. He is also Chief, Division of Palliative Medicine, and Professor, Department of Geriatric Medicine, at the John A. Burns School of Medicine at the University of Hawaii at Mānoa.
LymphaCare Hawaii advocates for cancer survivors who develop lymphedema
Louise Tanswell (Ellie) RN LMT CLT-LANA and Rocky Lee, Breast Cancer Survivor from LymphaCare Hawaii presented at our August 2022 Kōkua Mau monthly meeting.
LymphaCare Hawaii advocates for cancer survivors who develop lymphedema (LE). These survivors are often “the forgotten ones” who suffer in silence, because their medical team is not taking their symptoms seriously. Watch the video and take a closer look at the problem and how LymphaCare is taking action to help!
Palliative Care – Extra Support for People with Cancer
Individuals living with cancer, their loved ones, caregivers, and healthcare providers learn how Palliative Care supports individuals with serious illness. This presentation is a partnership of Kōkua Mau and the Quality of Life committee of the Hawaii Cancer Coalition The recorded session helps people learn about what palliative care is, who the team is, and what services are included.
A Caregiverʻs Journey with Palliative Care
A moving caregiver’s testimony about Andrea Bacos and her husband’s cancer journey with palliative care. Living on Maui, she talks story how they benefited from the palliative care team in Honolulu and at home. (Tissues handy might be advisable.)
VA Resources for Seriously Ill Veterans in Hawaii
What veteran home care options are available in the community? How can we partner with providers to help navigate veteran benefits & services for the seriously ill?” Please join Kōkua Mau’s own Dr. Emese Somogyi, Palliative Care Physician, VA Pacific Islands Healthcare System, to hear about their programs. Dr. Katie Melton, Amanda Wong (APRN) and Dr. Lavonda Nakamoto graciously agreed to participate to address other support services (e.g. HBPC, H:HHA, etc) that may be provided by the VA. A presentation of the We Honor Veterans program in collaboration with Bristol Hospice.
Veterans Benefits and Entitlements
Col. Ron Han, Director of State Office of Veterans Services, provided an overview of their mission in OVS and provide information how Veterans can get connected with benefits and entitlements. This is a joint effort with Bristol and the We Honor Veterans program.
Palliative Care Awareness Campaign on Instagram in Hawaii
Our first Instagram Campaign promoting Palliative Care in Hawaii from the fall of 2021. Our campaign was researched, implemented and evaluated by three amazing University of Hawai‘i West O‘ahu students, who are presenting their work.
We believe this is the first Instagram campaign of its kind in the country as it was geared at the public and not at professionals. They share what we learned about messaging and social media and palliative care.
Advance Care Planning Innovations in Community Outreach in Hawaii
Kōkua Mau’s own Advance Care Planning Coordinator, Hope Young, and Let’s Talk Story Ambassador, Susie Lee presented at the October 2021 Kōkua Mau meeting. Hear more about how Kōkua Mau’s Let’s Talk Story Program has grown, even during a pandemic!
This will be a lively and entertaining session on the collaborations on Advance Care Planning through partnerships with community organizations including senior clubs, faith communities, senior centers, and workplace wellness initiatives.
In June 2021, the Coalition for Compassionate Care of California (CCCC), in partnership with the Arizona Hospital and Healthcare Association and Kōkua Mau held the 13th Annual Palliative Care Summit and invited Kōkua Mau to be breakout presenters on our engaging and effective ACP programs. This will be a Hawaii focused follow-up presentation.
Update on POLST
Amy Vandenbroucke, Executive Director for National POLST presented about POLST nationally, their new guidance documents and the new National POLST form. The Q&A session of her May 2021 presentation at the Kōkua Mau monthly meeting is included in this video.
2:08 Amy Vandenbroucke, Executive Director for National POLST
An Update on Hawaii’s Our Care Our Choice Act
Our April 2021 Kōkua Mau meeting features an update on the Our Care Our Choice Act in Hawaii after the first 2 years by five presenters. Presenters: Laura Arcibal, HI Dept of Health, Jodi Shaw, Kaiser Permanente, Michelle Cantillo, Hawaii Pacific Health, Erin Hamilton, Bristol Hospice, Caryn Ireland, Consultant with Compassion & Choices. Time code for each presenter at ‘show more’ in our YouTube channel.
Innovations in Palliative Care
Our partners at Hawaii Care Choices are providing high quality palliative care in their rural community through a series of innovations in Hilo, Hawaii. Our Monthly Meeting in March 2021 is a talk-story session with Lani Weigert, Community Relations Manager and Cara Sadira, Community Liaison implementing the programs and experiencing first hand the real change happening.
Help with stress and anxiety in COVID-19 times – Thought Field Therapy (TFT)
Our virtual Kōkua Mau Meeting, with hands-on (zoom) presentation about TFT or Thought Field Therapy featured Dr. Caroline Sakai. Watch the recording. Are you looking for innovative ways to address and deal with stress and anxiety due to the COVID-19 pandemic? More.
Funerals & Memorials are very different these days. What are new ways to grieve, mourn, comfort and honor?
How are we supporting people in our community whose loved ones have died but are not able to go to funerals or memorials in a usual way because of the pandemic? Watch our (Virtual) Kōkua Mau Monthly Meeting from August 27, 2020.
In Hawai‘i, about 1,000 people die a month so nearly 6,000 people have died since gathering restrictions began impacting 10s of 1000s of people have not been able to grieve, mourn and comfort each other.
Learn about what is happening in our community and strategize about solutions. Click on the time code to jump to a specific presentation on our YouTube channel.
- 0:03 Context and introductions
by Jeannette Koijane, Executive Director, Kōkua Mau
- 03:15 Military rituals in the time of COVID by Patricia W. Nishimoto, DNS, FAAN, Oncology Clinical Nurse Specialist, Tripler Army Medical Center
- 12:01 What resources are available? Support groups and extra support in the time of COVID? by Valerie Payton MA, LCSW, Bereavement Social Worker, Home Hospice, St. Francis Community Health Services
- 35:39 What are mortuaries seeing in these times when no one can come together – by Pete Dilwith, Pete Dilwith, CFSP, CPC, CCO, VP of Operations, Mililani Memorial Park & Mortuary.
- 54:42 Clarence Liu, Retired chaplain (navian), local boy
Advance Care Planning in the time of COVID-19 in Hawaii.
National and local experts agree that advance care planning continues to be important to make sure that people’s wishes are known. Hear from our local experts on how they are approaching these conversations and what opportunities and challenges they encounter and hear from 6 local experts who presented at the June 25, 2020 Kōkua Mau Meeting. Hear from:
- Jeannette Koijane, Executive Director, Kōkua Mau – A Movement to Improve Care Direct link to speaker click on the time: 00:45
- Michelle Cantillo, Advance Care Planning Coordinator at Hawai‘i Pacific Health. Direct link to speaker click on the time: 2:48
- Amy Hamane, Volunteer at Community First, Hilo 10:46
- Susan Michihara, Interim Manager, Ambulatory Social Work at Kaiser Permanente 28:47
- Lori Protzman, Advance Care Planning Coordinator at Queen’s Medical Center 48:28
- Hope Young, Advance Care Planning Coordinator at Kōkua Mau 58:47
Breaking the Ice: Personal Stories on End-of-Life Issues (DVD)
Kōkua Mau produced an award-winning trigger video that is an excellent tool for starting advance care planning conversations. Personal stories from three local families illustrate the importance of advance directives, starting conversations about end-of-life issues and effective pain management during the 8-minute video.
We officially have a Kōkua Mau YouTube channel! www.youtube.com/c/KokuaMau
Palliative Care Summit 2020
Our very successful Palliative Care Summit on April 25, 2020 in Honolulu was the first of its kind in Hawai‘i. More on our website.
Some of the most important conversations you will ever have
Our video “Some of the most important conversations you will ever have” gives a short 3 minute introduction to Kōkua Mau’s work. It was selected as a winner in the Ananda Fund Hawaii video competition in January 2014.
More recordings from our monthly Kōkua Mau Meetings
We need your help: Please visit our YouTube channel and ‘like’ our movies.
We are always looking for volunteers to talk about their experiences in a video about conversations, advanced directives or POLST. If you’re so inclined please let us know.
Update from Kokua Mau: Advance Care Planning and Dementia
Presenter: Jeannette Koijane, MPH, Executive Director, Kokua Mau: A Movement to Improve Care
About Breaking the Ice: Personal Stories on End-of-Life Issues (DVD)
At the time this video was produced streaming option were very limited and expensive. Now everybody can just click on it and watch it in HD. The video is still available on DVD for $20. Available on DVD only (sorry, we are long out of the VHS option). It can also be borrowed from the Hawai‘i State Library System on all islands.
Living Your Dying, an inspiring 57-minute (DVD)
Mitsuo Aoki was a semi-retired theologian, minister, college professor and founder of the University of Hawaii’s Department of Religion. For over four decades the Rev. Dr. Aoki had shown others how to experience death not merely as an end, but as a vital, inseparable part of life.
Please spread the word about this extraordinary film! All those who attended the premiere and saw the broadcast were taken on an amazing journey that affirmed life and love in the very real presence of death.
Kōkua Mau is now a distributor for the DVD. Please order the DVD through the Kōkua Mau website using our ORDER FORM.
For more about the DVD, please visit MitsAoki.com
Palliative Care Videos
This video animation compares palliative care to the foundation of a bridge. While illness may weaken the foundation, the palliative care team provides a stronger layer of support. Watch more videos at GetPalliativeCare
Meet George, a man who has always lived with the ‘aloha” spirit as he experiences one last luau
More videos about hospice care can be found at Moments of Life. The goal of Moments of Life: Made Possible by Hospice is to educate the public about the choices we all have when facing a life-limiting illness, and how choosing hospice is not ‘giving up.’ The campaign is also about capturing vivid, emotionally powerful ‘moments’ on video that show what people receiving hospice care genuinely experience. You will find stories from across America, from the patient, family caregiver, and hospice professional points of view. And you may be surprised to see how much more ‘living’ hospice enables in the last chapter of life.
More Kōkua Mau Resources:
Five Wishes® Advance Directive
Five Wishes® is an easy-to-use advance directive (AD), a legal document in which you name the person you want to make healthcare decisions for you (in the event you no longer can) and state your wishes for healthcare treatment. You do not need a lawyer or a notary to complete it. Cost: $5/booklet.
Five Booklets on End-of-Life Planning and Care
Visit our dedicated five booklets page, where you can download the PDF files.
- Advance Care Planning: Making Choices Known (each booklet has 20 pages.) A workbook to document the kind of care you want if you are unable to make decisions for yourself.
- Planning Ahead: Funeral and Memorial Services. Document your funeral or memorial service preferences ahead of time. Includes tips for working with mortuary or funeral homes.
- Preparing to Say Good-bye: Care for the Dying. Learn about common symptoms experienced by dying people and what you can do to make the dying person more comfortable.
- Death Occurs: What to Do When a Loved One Dies. A guide to help you get through the hours, days, and weeks following a loved one’s death.
- Help for the Bereaved: The Healing Journey. Learn about the common expressions of grief, the healing process, and when to get help.
New Resource: Audio Version of the Starter Guide
The Conversation Project has created audio versions of their English Starter Guides. Subjects available on audio include:
- The Conversation Starter guide
- How to choose your Health Care Proxy (Agent)
- How to be a Health Care Proxy (Agent)
- Talking with a Health Care Team
- For Caregivers of People with Alzheimer’s or other forms of Dementia
These guides are between 14-19 minutes long, and are a great alternative for individuals who prefer using audio tools. The audio guides are currently listed with the other guides.
Note: These links are being provided as a convenience and for informational purposes only; they do not constitute an endorsement or an approval by the Kōkua Mau of any of the products, services or opinions of the corporation, organization or individual. Kōkua Mau bears no responsibility for the accuracy, legality or content of the external site or for that of subsequent links. Contact the external site for answers to questions regarding its content.