September 2018: We have exciting news: the 16-page Kokua Mau booklet “A Guide to Advance Care Planning: Making Life Decisions” is re-printed.
Now available with updated wording, the new booklet reflects 2018 changes to hospital and community based palliative care programs and updated phone numbers. A big big mahalo to Mountain-Pacific Quality Health for their generous sponsorship of printing 40,000 copies!
It is our hope that, for instance, every Medicare recipient will have access to the booklet. We encourage you to make good use of this excellent resource and distribute it widely within your network. Please contact us and let us know how many copies you would like and please check out the pick up instructions in the bottom of the page.
This 16-page booklet “A Guide to Advance Care Planning: Making Life Decisions” by Kōkua Mau is designed to help you make informed advance care planning decisions for when you are seriously ill. Many of the ideas and terms explained in this booklet might be new to you but are very common in medical settings and are important for you to know.
Although modern medicine helps many people lead longer and healthier lives, it has limits. Many of us may fear that medical technology could help us to live longer but leave us dependent on others, in pain, and unable to think or make decisions for ourselves.
This booklet list resources and organizations (with phone numbers) you can call. In this booklet you will find answers in plain English about subjects hard to talk about or to address. It talks about questions you and you loved ones might have such as:
- Promoting Better Communication and Shared Decision-Making
- What is Palliative Care?
- What is Hospice Care?
- What is Comfort Care?
- Medical Conditions Associated with Serious Illness
- What is CPR?
- What is Mechanical Ventilation?
- What is Artificial Nutrition and Hydration?
- Other Life-prolonging Treatments
Download Options for the 16 page document (these files are optimized to be read on the computer, phone and tablet screen):
- 2 per page (8-page document, formatted to read on the screen, with page 1 & 2, 3 & 4, etc.)
- One per page (easier to read in handheld devices)
- 2 per page optimized for printing (larger file size 2.1MB). Please note: this is still a file with pages 1 & 2, 3 & 4, just with a higher resolution. This file is not formatted to print as a double sided booklet.
This has been a collaborative effort and we thank everyone, especially the Advance Care Planning committee who has helped to finish it up.
THANK YOU to Mountain-Pacific Quality Health for printing the latest copies of 40,000 brochures with the updated wording.
The rest of the production was covered by a grant from the National POLST office.
To date, over 50,000 copies of the booklet has been distributed across the state, and an updated version has been printed and is now available. Thanks to the generosity of Mountain Pacific, we are able to distribute the booklet to the public, community, and health care organizations.
Organizations who wish to obtain and distribute the booklet can call Mountain Pacific at (808) 545-2550 to schedule a pick up from their offices at 1360 South Beretania St. Ste 501. Delivery services are no longer available. Neighbor island organizations can call Kōkua Mau at (808) 585-9977 for shipping and handling costs.
Thank you all for being a part of our movement to improve care, and special thanks to Mountain Pacific for your sponsorship in this endeavor.
Mountain Pacific Quality Health
1360 S. Beretania St. Ste. 501
Honolulu, HI 96814
- To print a double sided booklet that is stapled in the middle click here (currently not available)