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A Caregiverʻs Journey with Palliative Care

June 24, 2022 markus Good to know, Hospice, Kokau Mau Virtual Meetings, Palliative Care, Talk Story 0

A moving caregiver’s testimony: Andrea Bacos and her husband’s cancer journey with palliative care. Living on Maui, she talks story how they benefited from the palliative care team in Honolulu and at home. (Tissues handy might be advisable.)

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News

  • Palliative Care Nursing Education at Chaminade University of Honolulu April 7, 2023
  • Do you know what a Community Health Worker (CHW) is and how they can help in serious illness care? April 5, 2023
  • Compassionate Care and Evidence-Based Practice: Is it possible for them to co-exist? March 3, 2023
  • Recording: Advance Care Planning Billing and Coding for Billing Clinicians January 27, 2023
  • Psychedelic Medicine and Palliative Care: An exploration of old and ancient therapies to address twenty-first century clinical challenges December 16, 2022
  • A Caregivers Journey with Palliative Care 3-minute video November 2, 2022

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#ccccsummit23 #ccccsummit2023 #ccccsummit23 #ccccsummit2023
“Death is not failure” Dr Wesley Ely, keynote “Death is not failure” Dr Wesley Ely, keynote speaker #ccccSummit23
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We are at the Papakolea health fair at Lincoln Ele We are at the Papakolea health fair at Lincoln Elementary until 2pm.
Kokua Mau Advance Care Planning Coordinator, Hope Kokua Mau Advance Care Planning Coordinator, Hope Young is featured tomorrow on Get Your House in Order. Catch the replay on YouTube
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We are partnering with Hawaii Alliance of Pacific We are partnering with Hawaii Alliance of Pacific Islanders to bring Advance Care Planning to Pacific Islanders.
Register here: https://docs.google.com/forms/u/3/d Register here: https://docs.google.com/forms/u/3/d/e/1FAIpQLSdY7R6gDle-FSAB6OM8BuJ0QwEyCdgILXp7_bNhw22WonXOow/viewform?usp=send_form
Cancer survivorship conference . Nice to see folks Cancer survivorship conference . Nice to see folks in person!
Let's demystify palliative care. Let's demystify palliative care.
Join us to learn more about palliative care. Hear Join us to learn more about palliative care. Hear from a caregiver about her experiences with palliative care. Register in advance for this Zoom meeting
Do you know what Advance Care Planning (ACP) reall Do you know what Advance Care Planning (ACP) really is and who should do ACP and complete an Advance Health Care Directive (AHCD or AD)? 

ACP really is a gift for your loved ones, it includes having meaningful conversations regarding wishes for care, naming your health care agent aka your champion, your advocate, the person you trust to speak for you if you are unable to speak for yourself. 

Some find these conversations uncomfortable, I mean, who wants to think about the possibility of needing an AD when they are still healthy? We hope to encourage you to explore your own mortality, not to be morbid, but rather to be proactive—because the only thing guaranteed in life is death and taxes. 

We started our first series on palliative care—care the way it should be, to support people with serious illness, and their loved ones. Our next series will be on Advance Care Planning, we hope you will join us to learn why ACP is really important for you, and why ACP is a gift for your loved ones. 

#advancecareplanning #acp #kokuamau #letstalk
Happy New Year! Wishing you and yours a prosperous Happy New Year! Wishing you and yours a prosperous, joyous and healthy new year!
In 2022 we will be sharing new resources on Advance Care Planning (ACP), documents to support your wishes, (really a thoughtful gift for your loved ones), support for serious illness through Palliative Care, a better understanding of what hospice is, and who could benefit from using it, and so much more to help prepare you for possible future healthcare decisions. 
Join us in the new year as we explore “this space”. See you soon!
#palliativecare
#AdvanceCarePlanning
#kokuamau 
#agift 
#letstalk 
#2022
Hello everyone, as our internship campaign comes t Hello everyone, as our internship campaign comes to an end (we know, we’re sad about it too!), we wanted to give a recap about palliative care. 
Palliative care is specialized medical care for people living with a serious illness. This type of care is focused on providing relief from the symptoms and stress of the illness. The goal is to improve the quality of life for both the patient and the family. 

• Palliative care is provided by a specially-trained team of doctors, nurses, and other specialists who work together with a patient’s other doctors to provide an extra layer of support. 

• Palliative care is based on the needs of the patient, not on the patient’s prognosis. 

• This care is appropriate at any age and at any stage in a serious illness, and it can be provided along with curative treatment.

We hope that we were able to provide enough information for everyone to learn what palliative care is, how it differs from Hospice, the different ways palliative care can help, and just overall bring awareness to everyone about Palliative Care. 

The next topic that we will be discussing is Advance Care Planning!! Stay tuned for an IG Live later today with Hope Young, Kōkua Mau’s Advance Care Planning Coordinator!

Although we are ending our internship campaign, the Kōkua Mau will not be going away! Us interns will be passing the account to the Kōkua Mau staff for further postings, so don’t go away!! 

#palliativecare #palliativecarehawaii #kokuamau #supportivecarehawaii #supportivecare #youarenotalone #Holistic #HolisticCare #LiveYourBestLife #HPC #HPM #palliativemedicine #SeriousIllness #ChronicIllness #SeriousIllnessCare #caregivers #caringislove #familycaregiver #wearefamily #therebecausewecare #luckywelivehi #hilife #hawaiihealthcare #livelocal #carehowitshouldbe #patientsfirst #livingwell
Just a friendly reminder! We will begin a new topi Just a friendly reminder! We will begin a new topic, Advance Care Planning. Join us for another IG live tomorrow at 1:00pm HST with Kōkua Mau’s Advance Care Planning Coordinator, Hope Young, where she will be introducing the topic & talking more about Advance Care Planning! 

WE HOPE TO SEE YOU THERE! 

#advancecareplanning #palliativecare #palliativecarehawaii #kokuamau #supportivecarehawaii #supportivecare #youarenotalone #Holistic #HolisticCare #LiveYourBestLife #HPC #HPM #palliativemedicine #SeriousIllness #ChronicIllness #SeriousIllnessCare #caregivers #caringislove #familycaregiver #wearefamily #therebecausewecare #luckywelivehi #hilife #hawaiihealthcare #livelocal #carehowitshouldbe #patientsfirst #livingwell
Hello everyone! Tune in for another Talk Story IG Hello everyone! Tune in for another Talk Story IG Live this Thursday, November 18, 2021 at 1:00 PM HST!

We will be going over Advance Care Planning with Kōkua Mau’s Advance Care Planning Coordinator, Hope Young. 

We hope to see you there! Feel free to ask any questions that you may have or to tell us a story of your own!

#advancecareplanning #palliativecare #palliativecarehawaii #kokuamau #supportivecarehawaii #supportivecare #youarenotalone #Holistic #HolisticCare #LiveYourBestLife #HPC #HPM #palliativemedicine #SeriousIllness #ChronicIllness #SeriousIllnessCare #caregivers #caringislove #familycaregiver #wearefamily #therebecausewecare #luckywelivehi #hilife #hawaiihealthcare #livelocal #carehowitshouldbe #patientsfirst #livingwell
Palliative care is an important aspect of treatmen Palliative care is an important aspect of treatment for children who are suffering from a serious illness. It is also a valuable source of assistance for their families. The information in this pamphlet will assist you in understanding how this sort of care may benefit your child and family.

Palliative care can help your child and family cope with the symptoms, pain, and stress of a serious illness. Palliative care can assist you and your family in dealing with your child's sickness. It has the potential to: 
• Reduce your child's pain and other sickness symptoms. 
• Offer emotional and social support while keeping your family's cultural beliefs in mind. 
• Encourage your child's health-care professionals to collaborate and communicate with one another in order to achieve your goals. 
• Begin open talks about care alternatives with you, your child, and your health-care staff.

Palliative care surrounds you and your family with a team of professionals who work together to provide you with the best possible care. It's a collaboration between your child, his or her family, and the medical staff. This group pays attention to your preferences and assists you in considering your family's care alternatives. They will work with you and your child to develop a family care plan. They can also assist when your child transitions from one care facility to another (for example, the hospital) (e.g. outpatient care or care at home).  

**For more information on Pediatric Palliative Care, click the link in our bio!!

#pediatrics #pediatricpalliativecare #palliativecare #palliativecarehawaii #kokuamau #supportivecarehawaii #supportivecare #youarenotalone #Holistic #HolisticCare #LiveYourBestLife #HPC #HPM #palliativemedicine #SeriousIllness #ChronicIllness #SeriousIllnessCare #caregivers #caringislove #familycaregiver #wearefamily #therebecausewecare #luckywelivehi #hilife #hawaiihealthcare #livelocal #carehowitshouldbe #patientsfirst #livingwell
Join us tomorrow for another Live! Our special gue Join us tomorrow for another Live! Our special guest will be Dr. Daniel Fischberg.l, Medical Director for the Pain and Palliative Care Department at the Queen’s Medical Center in Honolulu! 

We look forward to talking with you and hearing your questions and stories, if you’d like to share!! 

See you all tomorrow! 

#palliativecare #palliativecarehawaii #kokuamau #supportivecarehawaii #supportivecare #youarenotalone #Holistic #HolisticCare #LiveYourBestLife #HPC #HPM #palliativemedicine #SeriousIllness #ChronicIllness #SeriousIllnessCare #caregivers #caringislove #familycaregiver #wearefamily #therebecausewecare #luckywelivehi #hilife #hawaiihealthcare #livelocal #carehowitshouldbe #patientsfirst #livingwell
Palliative care works best when it is started as s Palliative care works best when it is started as soon as you realize you need it during your treatment. People who receive palliative care in addition to cancer therapy frequently have less symptoms, a higher quality of life, and are happier with their treatment. Palliative care is available at any age and for many different serious illnesses. 

Palliative treatments vary widely and often include:
* Medication
* Nutritional changes
* Relaxation techniques
* Emotional and spiritual support
* Support for children or family caregivers

#palliativecare #palliativecarehawaii #kokuamau #supportivecarehawaii #supportivecare #youarenotalone #Holistic #HolisticCare #LiveYourBestLife #HPC #HPM #palliativemedicine #SeriousIllness #ChronicIllness #SeriousIllnessCare #caregivers #caringislove #familycaregiver #wearefamily #therebecausewecare #luckywelivehi #hilife #hawaiihealthcare #livelocal #carehowitshouldbe #patientsfirst #livingwell
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