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About having conversations, pain, advance directives and more.

Useful Links provided by Kokua Mau

 These are some sites weʻve found helpful.  Please send your suggestions to Kokua Mau for other useful links we could include.

 

Data and research sites

Access to Growth House Mega Search Engine

The Center to Advance Palliative Medicine (CAPC)

Dartmouth ATLAS

EDELE – (Epidemiology of Dying and End-of-Life Experience)

Facts on Dying

Shaare Zedek Cancer Pain and Palliative Medicine Reference Database

 

Professional Organizations/Certification

 

American Academy of Hospice and Palliative Medicine (AAHPM)

American Board of Hospice and Palliative Medicine (ABHPM)

Hospice Association of America

Hospice & Palliative Nurses Association

National Board for Certification of Hospice & Palliative Nurses (NBCHPN)

National Center for Health Statistics

NIH Interactive Textbook of Symptom Research

National Hospice and Palliative Care Organization (NHPCO)

The Social Work in Hospice and Palliative Care Network (SWHPN)

 

Education, etc.

Americans for the Better Care of the Dying (ABCD)

End of Life Nursing Education Consortium Project (ELNEC)

End of Life Physician Education Resource Center (EPERC) Fast Facts

Metta Foundation

Missoula Demonstration Project

Respecting Choices Advance Care Planning

 

 

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