Palliative Care Resources for Hawai‘i compiled by Kōkua Mau
Please note: These lists were compiled and updated by Kōkua Mau as a community service in 2015. Please call the number listed to find out details about the specific group or program, as time and personnel can change. We need your help to maintain these lists and ask you to send any additions or edits to us at info(at)kokuamau.org. Thank you.
What is Palliative Care?
Palliative care is specialized medical care for people with serious illnesses. This type of care is focused on providing patients with relief from the symptoms, pain, and stress of a serious illness – whatever the diagnosis.
The goal is to improve quality of life for both the patient and the family. Palliative care is provided by a team of doctors, nurses, and other specialists who work with a patient’s other doctors to provide an extra layer of support. Palliative care is appropriate at any age and at any stage in a serious illness, and can be provided together with curative treatment. (Definition in 2011 by the Center to Advance Palliative Care CAPC).
What is Hospice Care?
Hospice is a type of palliative care offered in the last six months of life and focuses on caring, not curing. In most cases, care is provided in the patient’s home by an interdisciplinary team but also provided in in-patient and long-term care facilities. Hospice is covered under Medicare, Medicaid, and most private insurance plans and is provided on all islands.
Palliative care covers a variety of services helping to relieve suffering, offer choices and provide support. These lists cover resources across the palliative care continuum. To keep these as up to date as possible, we have provided you with pdf files that are easy to print and for example put in a binder.
Please click on the topic to access the PDF file or web page with the list of resources
POLST (Provider Orders for Life-Sustaining Treatment) is a provider’s order that gives patients more control over their end-of-life care. More information here
Grief and Bereavement Support (March 2016, pdf 14 pages): The Bereavement Network of Hawaii maintains a comprehensive, constatly updated list of support groups and services in Hawai‘i.
Overnight Respite (pdf 2 pages): Out of home overnight care facilities provide non-medical care for frail seniors in need of supervision, personal services, protection, assistance and guidance.
In Home Respite (pdf 3 pages): Temporary relief for caregivers provided in the home.
Other Respite Services (pdf 6 pages): This section lists other providers of temporary relief for caregivers, including overnight stays in facilities, in-home assistance, and may include housekeeping, shopping, and errands. Home health agencies provide skilled nursing services and other therapeutic services ordered by a physician to homebound patients.
Adult Day Care & Day Health (pdf 6 pages): Provides care outside the home. Participants have the opportunity to interact with others while being part of a safe and structured environment.
Support Groups in Hawaii (pdf 7 pages): Support groups on all islands for a variety of health issues, including those witha caregiver focus. Call for meeting details.
Cancer Support Groups in Hawaii (pdf 5 pages): Covers all islands. Call for meeting details.
Queen’s Medical Center Cancer Support Groups and Cancer Education (2015)
Family History Compilers (pdf 2 pages): Create a visual personal biography and preserve your family mementos using photos and film.
Hawaii has an excellent Family Caregiver Coalition. Please contact (coming soon) for more information or to be added to their mailing list.
Other Web Resources for Caregivers:
Executive Office on Aging: (808) 586-0100
No. 1 Capitol District, 250 South Hotel Street, Suite 406, Honolulu HI 96813-2831
Honolulu Elderly Affairs Division: (808) 768-7705
Standard Finance Building, 715 South King Street, Suite 200, Honolulu HI 96813
Office on Aging – County of Maui (808) 270-7774
2200 Main St., Suite 547, Wailuku, HI 96793
The County of Kauai Agency on Elderly Affairs (AEA): (808) 241-4470
Pi`ikoi Building, 4444 Rice Street, Suite 330, Lihue HI 96766
Hawai`i County Office of Aging
Hilo Office: (808) 961-8626
1055 Kino’ole Street, Suite 101, Hilo HI 96720-3872
Kona Office: (808) 323-4390
Hanama Place, 74-5044 Ane Keohokalole Hwy, Bdg B, Kailua-Kona HI 96740
Please consult these Hawai‘i focused resources:
Elderly Affairs Division
Honolulu City and County’s Resource for Aging, Disability and Caregiving: You may also want to download their most recent publications as PDF files.
2012 Aging and Disabilities Issues Booklet (pdf file 3.3MB)
The 2012 Aging and Disabilities Issues booklet is now available. The seventh annual publication offers an overview of legislative issues dealing with aging, disability, caregiving, and long-term supports and services. The purpose is to call attention to the priority issues which deserve the serious attention of our lawmakers, advocates, and the public. This is a joint project of the Hawai‘i Family Caregiver Coalition, the Hawai‘i Pacific Gerontological Society, and the Maui County Office on Aging. The booklet was distributed to legislators in March 2012 during a Family Caregiver Advocacy Day. O‘ahu Senior Handbook 2012 to 2014
Honolulu 2012-2014 2012 seniorhandbook (pdf file)
Family Caregiving Guide (pdf file)
Written to help those that are providing long term care to others. Includes information and advice about services available in Honolulu County.
Services and Housing Options for Seniors on O‘ahu – UPDATED: 2013 (pdf file 1MB)
Published by the Kokua Kalihi Valley. Authored by Drs. Ritabelle Fernandes, and the late Hortense M. Gandy it provides a comprehensive look at current housing alternatives on O‘ahu and resources for transportation, home care, meals and available accommodations. This FREE publication is made available to seniors compliments of Kahala Nui.
2008-2010 Kaua’i Senior Information and Resource Directory (pdf file)
A directory of community organizations, service providers, and other companies that offer products and services for aging, disability and caregiving.
There are more and more resources focusing on care giving on the Web. This list is not exhaustive, but here are some highlights provided by members of our network.
Hā Kūpuna, the National Resource Center for Native Hawaiian Elders, is one of three National Resource Centers for Native Elders funded by the U.S. Administration on Aging, Department of Health and Human Services.
University of Hawai‘i Center on Aging
The health and quality of life of older adults is a vital concern in this changing demographic and economic climate. To enhance the well-being of older adults, the University of Hawai‘i Center on Aging is committed to interdisciplinary and collaborative efforts in research, educational programs and service to the community.
Hawaii Pacific Gerontological Society
Organized in 1979, the Hawaii Pacific Gerontological Society (HPGS) is a nonprofit organization dedicated to improving the quality of life of Hawaii’s older adults
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